A messy unpredictable future?


Recently I was lucky to be a member of a leadership Indaba. An Indaba is a South African word often used to describe a gathering or meeting and I was with a diverse group of leaders thinking about the system challenges we see in the health and care system and this blog is my reflections at the end of the Indaba.

anne 1983I started my nurse training on 31st January 1983. As it turns out 1983 was quite an important year for the NHS too. On 6th October of the same year the Griffiths report was published. Funnily enough it was mentioned in our training; I can remember being intrigued as to why a Director from a supermarket called Sainsbury’s should be asked to look into how the NHS was run. We didn’t have a luxurious Sainsbury’s in the North East where I lived so that made it exotic and slightly strange and I confess I might have been more impressed back then if it had been M&S! Little did I know how important that report was going to be for the NHS but also my career.

Sir Roy Griffiths was asked by Margaret Thatcher to look into and give ‘advice on the effective use and management of manpower and related resources in the National Health Service’. As the Griffiths recommendations were implemented it started the evolution of a strong management culture that had by all accounts been lacking before this. Griffiths clearly pointed out that in his opinion there was little difference between NHS management and business management and the NHS went on to be restructured into a management hierarchy not unlike a national ‘for-profit’ business.

So how did that affect me? By the time I qualified in 1986 many of these structures were in place, budgets were devolved to wards and gone had ‘nursing officers’ and we had brand new ‘unit managers’ (who often happened to be a nurse). The first additional serious studying I did was a Certificate in Management, I had already been identified as having potential so this was the first thing that was suggested, and I went on to complete a Diploma in Management. I was ambitious and had a hunger for a healthy career – studying management was the way to go!

I believe that most of the senior managers in the NHS of my generation were brought up this way. Of course we need excellent general management in the NHS, probably more so than ever before, but this type of approach and culture may not be the only thing we need in 2015. Most senior managers are of my generation and if they have a career spanning decades in the NHS they too are likely to have a background context firmly embedded in general management. OrganisationManagers work through cultures of systems and order – give them a messy problem and they will seek to resolve it in a systematic and logical way. They most often seek order and control and although they believe in delegation, power is only given with a good dose of performance management sprinkled, or is it heavily blanketed, over the top. They seek organisational structures with clear and logical relationships, the right ‘span of control’ and formal reporting mechanisms that allow them to feed their external regulators. They seek to be successful at an organisational level as that means survival of their organisation – they are organisationally centric.

I was trained and educated like this but I believe that in 2015 and beyond it will no longer work. Over the last few years I am starting to see that the complex adaptive system that is the health and care system can’t survive if we behave like this and yet I still see these old styles of thinking. We often say the right things but we don’t walk the walk. So what do I mean:

1     Giving things up

In the new world working across communities, which is what we need to do, means giving up power and sometimes resources for the greater good. If we are going to change the way we deliver care it means some organisations will have to change and give up some of their share.  It takes good managers to make this happen but it takes guts to lead it.

I have blogged about this before, and I won’t repeat it here, for me Buurtzorg remains a fantastic example of siting power in organisations back where it matters, in the staff working directly with communities.

2               Dealing with messy people

Change in the way that we need it means messiness. It means small may be beautiful, that solutions delivered in local communities may be messy unpredictable and probably don’t look like to corporate solutions managers know best. It’s taken me a while to get used to this, the idea that each local ecology may be different from its neighbour but that’s how it is – messy and complex – so get used to it!

Salford Dadz for me is a perfect example of how messy can be glorious and beautiful – you can read more about it here. I’m not saying that it’s disorganised or out of control, more that its perhaps unexpected and beautiful for it – an example of asset based community development outside of the corporate systems with a unique system of its own.

3     The role of citizens and the impact of unexpected choices

Systems think they know best for people. I hear people talking this way all the time, assuming that all the expertise is in the ‘system’ and implying that there is none beyond. I do not believe this is true. Citizens, patients if you prefer, or even service users, may also have other ideas about what is the right thing to do and choose differently.

I remember working on a rehabilitation ward a couple of years ago. At the team meeting they were discussing a lady who wanted to go home. She wanted to go home despite the fact she couldn’t get up independently during the night to go to the toilet. She chose to go home and be ‘padded up’ at night, preferring her own bed and a sort of adult nappy rather than being in a care home or institution. It really made me think about the choices I might make. We may have some way to go with personal budgets but I think they could provide a way for people to make different choices. As system leaders we will need to help to make these things a reality even if they mean breaking up what we know and throwing it away and living with unexpected choices.

4     Finding energy where it smoulders

digitalawards VB, RL, AC

Lovely Victoria Betton, wonderful Roy Lilley and me kicking off the #PDDawards15

We need to find the energy where it smoulders, in communities, in people, in hearts and let it burst into flame. As well as the Indaba I have been helping Victoria Betton (@victoriabetton) to deliver the People Driven Digital unAwards – a celebration of people and solutions that come from the ground up. We had the award ceremony on Friday 3rd July (you can see the nominated people here) and its humbling to hear about people finding solution to problems for themselves. Yet we do little in the way of supporting these people, our systems are bureaucratic and laborious, almost impenetrable – we need to take some of this red-tape away to let the smouldering passion burst into glorious flames – this is how we can find new solutions. By the way the solutions came from everywhere, not just ‘patients’ but from staff, students and citizens with a drive and ambition to make things better. It was humbling.

5     Networks

connections 2I think John Kotter is right that in addition to formal systems we need to have in place there is a role for networks that sit alongside. The role of networks is the more creative change work, whilst letting managers get on with making sure the books balance and the operational services remain on track. These networks need to operate beyond the boundaries of organisations and may be populated with unexpected people. These will be the people who want to make a difference, the ones who are smouldering with the passion to do things differently and they will drive the change. Gone are the days when networking was just about careers now it’s about doing real business, making connections that drive and shift the whole system ecology.

So all in all the last year has been great for thinking. The last few years have helped me to perhaps evolve past the manager I was trained as in 1986 and I look forward with to the messy unpredictable future we face.

never stop learning

Social media and me


Private_Professional_SoMeFilmStillI think I joined Facebook in 2007; not exactly an early adopter but not a late-comer either. I can remember who sent me the link and why she said I would like it. She was right I did! Before that I was a user of ‘Friends Reunited’ too – you remember that? Where you could look people up from school? I became a Facebook fan and, as smart phones came into my life and I spent increasing amounts of time travelling with my phone in my hand, social media an increasingly important part of my personal life.

A little while later, in 2009, someone at work suggested I join Twitter. I am always curious about new things so I duly logged in and created my account – @anniecoops was born.

In February 2009, when I started my Twitter journey, I took ages to warm up. Like many people who I speak to I didn’t really ‘get’ it and after around 3 months of trying I gave up. Here is my illuminating first tweet :0) first tweet 1 (2)

I can’t remember what made me go back but after those 3 months but I suspect it was a challenge from someone who probably said ‘If you don’t get it, you are probably not trying hard enough’ and I absolutely can’t resist a challenge like that! I met some important friends along the way and by April 2015 I find that I have tweeted 74K times and now have 8600 followers. With the launch of a social media film that I have worked on with @NHSIQ I thought it was time to reflect on that journey and what has happened.

Here is a link to the film

annieAnnie was never my name, I always thought it was a bit twee for me, more of a nice girl name rather than the firm, straight and solid name Anne. I always say Anne is a good name, you can’t shorten it and it’s hard to mess with but I had no idea how ‘Annie’ was going to become part of my life. I had been called ‘Coops’ at work for quite a while and my son in the Cadets was called the same. When I tried to register @annecoops it was gone as was @annecooper. The addition of the ‘i’ to my first name was simply a pragmatic thing to do. I had no idea what was going to happen and that, by 2015, more people at work would call me Annie than Anne!

Facebook_BackyardFence_SoMeFilmStillMy social media journey has been a great addition to my professional life. Later in September 2012 started my wordpress blog and I re-discovered my love of reflecting through writing. By then AnnieCoops had taken hold as my ‘brand’ and also became the name of my blog.

I completely accept that social media is not for everyone – I dislike those who behave as zealots trying to pressurise people into using social media, particularly Twitter. It’s not for everyone but quite often there will be a platform that works for most people – I know lots of people who love Pinterest for example but I personally don’t get it as I clearly prefer the words and feelings that blogs evoke for me. I love Blipfoto as well but I am too ill-disciplined to be properly focussed on trying to improve my photography skills.

Social Media has been a positive experience for me and I thought it might be helpful to say why:

  • Professional inclusion

Working in informatics is hard. It’s like the geek club and most of the time I don’t actually belong in it – I’m tolerated and valued but not quite part of it either. Additionally in nursing informatics still feels peripheral. Back in 2009 I didn’t really think I was part of nursing, I had the sense, rightly or wrongly, that people didn’t really get the digital agenda and as a result I wasn’t really part of the nursing ‘family’ – I was labelled a geek* and therefore not part of where the nursing action was. Twitter changed that for me, I started to talk to other nurses and soon established a new network where I felt like I belonged and I continue to feel part of that family. It has given me a real opportunity to feel professionally re-connected and valued and to re-profile myself as more than the perceived ‘geek’.

  • Creating bridges

BridgesSocial Media has been great for me in making connections and creating bridges to new spaces. New spaces I have been given a glimpse into include connecting with more professionals including doctors, midwives, pharmacists, medical educators, people who working in housing and local government, the voluntary sector, leadership development, organisational development, education – the list is so long I can’t list everyone and I value all those connections more than I can explain. It has given my personal and professional life a greater breadth and depth that would not have been possible without social media. I value the eclectic nature of my connections and social media friends.

  • Being a patient

Being a professional who happens to have a long term condition like T1 Diabetes can be a challenge. I think for many years most of the time I ignored it. Social Media allowed me to not only find a Diabetes family but also to try to add value to that community. I have enjoyed blogging about my condition and also sharing via Twitter some of the ups and downs. I have tried to help others too and to share my expertise as a patient. I wish I had found this opportunity earlier in my life.

  • Access to resources and expertise

One of the very best things about Twitter is the generosity of the people I connect to. I have learnt more in the last few years about so many things and I believe that this is likely to make me a better professional but also a better person. Sharing is not just the technical stuff but thoughts feelings and emotions that help me to understand in a deeper way – it’s a better learning space than any lecture I have ever had at university.

* there is nothing wrong with being a geek it’s just that I’m not one by this definition: ‘”someone who is interested in a subject (usually intellectual or complex) for its own sake”social media film

Endings and beginnings


It’s been a tough few weeks and I feel sure it’s not quite over yet but I thought it might be better to write this in the middle of it rather than after it, if you know what I mean. I’m talking about endings and beginnings – moving from one job to another.Bridges

When I was at Roffey Park on my OD practitioner programme I fell in love with the Bridges Model of change. What is it that I love? I love the humanistic approach that it takes and how it almost ignores mechanistic approaches to change, placing a greater emphasis on how people react and eventually embrace change. I have been going through a change process and I think had people focussed on Bridges it could have been a whole lot less painful!

Bridges says there are 3 phases of change:

  1. Ending, losing and letting go
  2. The neutral zone
  3. The new beginning

Firstly I think good endings are important. They represent the chance to reflect back and unpick what has happened, good and bad, but importantly to celebrate achievements, to say thanks and to celebrate the moving on. Never leave people to go without acknowledging they played a part in whatever happened and say good luck. Marking the end for me appears to be important and without that I am left with a residual unpleasant aftertaste. Did anyone know I was even there?!old job new job

The second phase, the neutral zone, can be a scary place. It’s slow, it feels almost relentless, no matter how long or short it is, too slow for those of us who like pace. It’s like a grey middle ground, I am left with feelings of being neither here, nor there, with no sense of belonging. Fortunately for me I am old enough and experienced enough to know it will pass but it doesn’t stop me getting a lump in my throat and feeling tearful – it in other words it brings out less than the best in me.

So good beginnings, how can we do this? Create positive energy and make people feel welcome. Look after them like you would want to be cared for yourself. Look after the practical things to make the transition as easy as possible, for example make sure they have somewhere to sit and can make a drink! Simple things make a difference, no detail will go unnoticed. It’s a time when simple human kindness can help someone feel at home. Other tips include clarity about what will happen next but not too much, give them time to settle and also influence how it goes – no one wants to find themselves with no room for ideas, or manoeuvrability. I think a good beginning can colour and influence what happens next, where loyalties lie and how much of the discretionary effort people might be prepared to give as time moves on.Coffee

So what have I learnt? That we should celebrate endings, that people need support in transition and that good beginnings really matter. Simple messages really – maybe that’s why we forget.

Nursing workforce planning: are we just playing a numbers game?


calculator graphMost people who read the news in the UK are likely to have read recent articles that point to the possibility that there is a shortage of nurses[i][ii][iii]. In a time when we are talking about reconfiguring the way care is offered and moving care into people’s homes it is also well documented that we have an aging nursing workforce with particular concerns in community nursing.  In a report by the RCN in 2012, it was identified that almost 60% of the community nursing workforce could if they chose, retire in the next decade. Of course, it’s not just about the numbers of nurses who leave – it’s also the level of expertise that the system loses when these experienced nurses, who are likely to have up to 3 decades of experience, retire.

There are steps in place to try to attract nurses who were once registered but left the profession back into practice. This work is being led by Health Education England with a concerted public campaign to attract once registered nurses to undertake a period of updating to encourage them to return. You can read more about the campaign here.

Whilst workforce planning as a numbers game is important – we need to make sure we have an adequate flow of newly qualified nurses – what could be just as important is retaining those with the long years of experience to help to pass on their tacit knowledge and skills before they leave the profession through retirement.

Bearing this in mind a paper by Liebermann et al (2015) caught my eye. They discuss that, as well as adequately addressing the recruitment of new nurses, we also need to make sure we retain new entrants and encourage older nurses to postpone their retirement.

anne 1989 on wardI am now 51 and in the last year or so I have thought about the prospect of retirement more than ever in my life. I realise this is a natural progression, that looking forward is a good thing; I also recognise that if every one of my generation does this, there could be an inevitable skill gap. There are ways less experienced nurses can be supported to offer safe care such as decision support technology but even I (as a nurse with a passion for technology) know that this can never replace decades of practice experience. So what do we know about why it is that nurses seek to leave the profession early?

Liebermann et al undertook a longitudinal study via questionnaire that sought to understand what conditions were most likely to encourage nurses to stay, with a focus on the possible differences between younger and older nurses. In other words, do we need to do different things to encourage younger nurses to stick with nursing and for older nurses to encourage them to put off an early retirement?

In some ways the conclusions are not surprising – nurses need good management support to stay and to help them to keep up to the hard demands that nursing places on us. What is perhaps more interesting is that they found differences between the younger and older nurses. The researchers concluded that ‘supervisors [managers] should foster nurses’ expectation of remaining in the same job until retirement age by providing age-specific job resources’ (Liebermann et al 2015).

By Ministry of Information Photo Division Photographer [Public domain], via Wikimedia Commons

By Ministry of Information Photo Division Photographer [Public domain], via Wikimedia Commons

We know that a multi-generational workforce may require different leadership styles, so called ‘baby boomers’ may differ from ‘generation x’ or ‘millennials’, but do we equally need to look at what conditions keep nurses satisfied with their work conditions in this generational way too?

I think this is a fascinating thought that we may need to think about. So, it’s possible that any efforts we make to encourage people to stay in nursing, if we don’t understand the needs of particular generations, may fail. My final point is are we just addressing a numbers game, when we need to start to focus in some detail on how we can retain nurses, recognising that different generations may have different needs?

Liebermann SC., Muller A., Weigal M.,Wegge J (2015) ‘Antecedents of the expectation of remaining in nursing until retirement age’ Journal of Advanced Nursing doi: 10.1111/jan12634

With thanks to Dr Susan Hamer for bringing this journal article to my attention :0)

PS thanks to Ruth Auton for pointing out this paper from HEE http://hee.nhs.uk/wp-content/uploads/sites/321/2014/05/Growing-nursing-numbers-Literature-Review-FINAL.pdf

[i] http://www.theguardian.com/society/2014/dec/17/nhs-nurse-shortage-health-service-overseas

[ii] http://www.rcn.org.uk/newsevents/news/article/london/nursing-shortage-pmqs

[iii] http://www.telegraph.co.uk/news/nhs/11349403/AandE-units-will-be-forced-to-declare-nurse-shortages.html

Golden silence


I learnt a lesson years ago about silence, you know, those empty space between words; I learnt that I didn’t need to fill them, that I could be comfortable in deep wells of silence. This week I reflected that I need to practice more.

cropped-northumberland.jpgWhen I did my leadership programme all those years ago we did a much hated exercise called ‘large group’. There was no structure, no agenda, no objective, just us and time. At first I was so uncomfortable I had to speak. I wasn’t the only one. Some of us shuffled and worried and spoke out filling the minutes and noiseless space. After the first couple of times I reflected on mine and others behaviours and decided I would experiment. I became a silent observer and spent my time listening and watching. I proved to myself that not only could I do it, it actually didn’t feel so bad. I know it improved my listening and observing too.

When I feel anxious or stressed I know I am more likely to dive in with words. I go really fast and have a reputation for being able to talk for England. This week a couple of things happened that made me think I perhaps need to practice silence more.

GoodMorningToAll_1893_songThe first was a great session by @heatherhenry. She talked about how to engage in communities and about giving people space and time, about not barging in with (probably the wrong) answers. She made me smile and gave me a tool for practice – she told us that if you want to be sure you have given someone time to answer, sing a whole chorus of Happy Birthday in your head – that’s just the right amount of time. I’m practicing and although it feels like a long time in my head it doesn’t seem to raise any eyebrows and actually people may well have told me things that they wouldn’t had I not given them time.

time to listenThe second is I spent a great day with a student nurse who is a self-confessed introvert. I reflected that I needed not to talk quite so fast, as, unlike some other colleagues, this conversation couldn’t be like a pacey game of tennis, where I serve the ball and they bounce it back. Perhaps it’s a bit more like golf with quiet walking time between hitting the ball.

Being mindful of silence has always been a positive thing for me but I do need to focus on doing it as my brain darts backwards and forwards and round about and it all tumbles out of my mouth. My son tells me all the time that I ask questions in 3s and it drives him mad – he just says – I can only answer one at a time and which one will it be? :0)

I know that for some people, like me, we are creative when we are bouncing ideas around verbally with others but I respect others right to time and silence. I promise I will continue to try as hard as I can to give people time, careful quiet listening and golden silence.

I had to post this! Silence is golden from the Tremeloes 1967

Thank goodness it was ophthalmology clinic and not sexual health.


I have lost many hours of my life talking about Information Governance (IG) and to make it worse it is not the subject that makes my heart sing.

computerI worked on the National Programme for IT and I have to say, despite what people might say, Information Governance was taken very seriously. So much so that the technical solutions that we worked on to create the best possible situations for holding and sharing the very sensitive information about people became increasingly elaborate and in many cases the solutions themselves were beyond my understanding. I think if we fell into a trap it was that one about increasing complexity making the issue worse, not better, and that we should have gone back to the citizen and kept it very simple.

We had complex use cases that tried to cover every possible sensitive scenario and tried hard to find solutions to them all.

It was hard and not very enjoyable work. But I do think we tried, we tried really hard to make sure it was the best it could be. I’m not sure we succeeded – my test for this is whether the debates have abated, they have not – but I know we put in much determined effort.  I was glad when I moved onto other more interesting and engaging work for me.

caldicottI know IG is a sensitive issue. I get it. I do my training every year and I am clear about my personal responsibilities. I have read Caldicott 2 and I understand not only my responsibility to protect information but also my duty to share when it the best for the patient.

I contrast this effort and experience with my visit to clinic on Friday which I tweeted about at the time. I arrived to the reception desk, in front of a very full, busy waiting area. The seats face the place you stand to book in and are actually quite close. The receptionist is lovely. Both this time and the last time I attended the same clinic I watched her offer very compassionate help to a number of people. But the booking in process stinks! I was asked for my name, address, date of birth and GP in front of the full waiting room; everyone must have been able to hear. I certainly heard every person who followed me recite their information.

waiting chairsI don’t think its OK to blame technology or the people who work in informatics and this feels like where the debates circle. I understand that electronic information can be accessed and shared potentially more widely than that single clinic with the 25 people who were sat observing but I have to say these are people who may well know me, my friends or my family, as they are local. Thank goodness it was ophthalmology clinic and not sexual health.

I accurately gave the feedback about my experience in the exceedingly small feedback box on the friends and family card including the feedback about the lovely receptionist.

Information governance is not just about IT!

‘But she’s my friend!’ – the power of making connections


connections 2A while ago I can remember @PaulJthinks encouraging people to follow me on Twitter as I was a hundred or so followers short of 3000. I now have nearing 8000 and I have been reflecting what that really means to me and how I use my valuable network.

There are a number of people who theorise about networks and connections. Metcalfe’s law is one of these, originating with a theory around Ethernet connections and now sometimes used to describe how number of possible cross-connections in a network grow as the square of the people in the network increases. In other words the community value of a network grows as the square of the number of its users increase.

It all sounds a bit technical to me, and a bit theoretical, but I’ve been reflecting on what my network means to me and how my numbers of followers seems to have grown without any deliberate act on my part to make it happen.

I have always been a connector in groups. In my social life I seem to create social groups and then, as they become impossible to manage socially as separate groups (there are just not enough days in a year), I join groups together. It’s not something I set out to do but I recognise that’s what happens; I am often the unique connection in our social groups – they lived next door, or I worked with them, or their children went to the same child-minder or I used to give them a lift to work.

I don’t set out to behave this way. I don’t set out to collect connections or people or friends it just seems to happen – I love people and I am very extrovert, not in the bouncing loud sort of way, at least all the time, but in the wanting to hear about people and share stories and experiences way. The truth is I am much more reserved than people think but this fascination with people makes me seem very extrovert I suspect (a previous blog covers exactly this here).

people connectingSo why am I thinking about networks and connections now? As I have strengthened my professional network with my social media activity I find I am increasingly focussed on how I can connect people together, that the relationship with me is not the most helpful one but that I can act as a sort of lightening rod to others; connecting wonderful people together. It hasn’t always felt this way but as the strength and depth of my social media network has increased I feel more able to do this – my investment in my relationships seems to have made them deeper and stronger. Again not deliberate act but on reflection that’s is probably what has happened.

When I first noticed this behaviour I did have a moment of anxiety. It’s a bit like when you are at school and your best friend wanders off with another friend that you introduced them to and my instinctive response might have been – ‘but she’s MY friend’.

Interestingly that isn’t what happens now and I’m fascinated by how connecting others to each other seems to step up the power in my network!  I have no idea how I got to 250 followers let alone near 8000 – it just seemed to happen but I do know I definitely feel connected to more great people.

lighteningIn the NHS today it feels more fragmented than ever before. Organisations seem less likely to share than in the past and networks that existed across Strategic Health Authorities for example feel like they have fallen away. I think that if we all behaved as active ‘connectors’ it might just power us up a little bit and we might even find that we become turbo charged if we connect beyond our usual networks; I personally love the fact I have connections in social care, housing, voluntary sector, who work for themselves, who work in the NHS – the list goes on. I don’t know exactly how it happened but I am glad it did and there is nothing more satisfying that making a successful introduction then watching some magic happen! I love my network and seeing it help me to help others through acting as a connector is doubly satisfying – even if there is a little demon on my shoulder saying ‘don’t forget to keep loving me too will you?’

Could you be a better connector? I’m going to keep trying.

Standing out or fitting in – matters of dress and heels.


I was rushing about this morning getting ready for work and I reflected that it was much easier when I wore uniform; choices were simpler and there was less need to think.

anne 1989 on wardPutting on my blue sister’s uniform was one of the proudest things I can remember; I never tired of it along with my silver buckle that my husband bought me. If I close my eyes I can put myself back there and feel myself sit up straighter, it really was very special. I liked wearing uniform. I enjoyed the feeling of identity it gave me.

All of this led me to think about the symbolism of dress and where I find myself as a middle aged, rounded sort of person. Clothes inevitably have played an important role in my life for lots of reasons.

heelsI recall in the 1990s progressing to a non-uniformed role for the first time. I was in my mid-twenties and it was after all the 90s, where power dressing was still very much de rigueur. I had shoulder pads, tight pencil skirts, frilly blouses and heels – lots of stiletto heels. When I walked through Leeds tonight on my way home the fashions of 2014 have some of those echoes – it made me smile. It’s interesting when life places you on the second time around – I just wish I had saved some of my best clothes from back then.

[An interesting note – when I looked for pictures of me in the 1990s I can find none. My son was born in 1990 and all I can find are dozens of pictures of him. I guess something changed in my priorities then!]

Interviews have always been a time for me where I almost get superstitious about what I wear; always new clothes and silly as it may sound best underwear. I had a friend who always wore red knickers for interviews. I guess in these types of situations we all want to stack as many of the cards in our favour as we can.

New jobs too, demand a close focus on the way I dress. Who do I want them to think I am? Feisty Annie in my slightly hippy tastes or a more serious moderate Annie? What I do know it this situation also demands some new clothes although in some ways this is just like the emperor’s new clothes – I’m just waiting for someone to find me out!

Today I am lucky that I get to visit many different areas of the healthcare system and find myself moving in and out of different organisational cultures but I notice patterns. In big acute trusts it still feels like there is a sort of power dressing going on, albeit the 2014 version. Contrast this with community and mental health services where the styles feel more relaxed and individualistic. I always think, now where am I off to, and which version of Annie do I need to wear today?

Annie at 50th Birthday Bash

Annie at 50th Birthday Bash

Being on platforms and speaking raises interesting issues – mainly those of heels. My lovely ex-boss and now friend tells me that I should always wear heels. I try, I really do, but I can no longer do it. I find myself choosing more moderate heels and go for colour and class rather than the stilettos of the past. It’s also part of the lot of someone with type 1 diabetes I think that a focus on removing the risk of sore feet somehow feels more important.

Informatics is a really interesting place to work; male dominated and lots of suits and yes, mainly grey ones. We do have the occasional GP floating around who has a slightly more relaxed mode of dress. What is a girl to do in this space? I go for ‘middle of the road’ and then, sometimes, in the evenings or for events, dress up in colours and sparkles, like a peacock. I think it disconcerts them occasionally and I like that!

peapodSo what does all of this mean? Conversations of late have been making me reflect on why I always seem to choose roles that are a bit unusual. I do it because I like it. But then why do I seek to conform with my dress and shoes? I think it’s probably part of what can be referred to as cultural capital – assets that lead to social mobility. I need to fit in to be taken seriously and dress may be part of how I do this. Do I give up my identity as a result? I’m not sure. I think I express my identity in different ways – a business like suit with my tiny pea-pod necklace or a beautiful scarf.

My reflections are leading me to take a look again at how I present myself – am I expressing myself in the way I want to? Are you?

belt and badges

Big Data – Orwell or Huxley


Big data is an all-encompassing term for any collection of data sets so large and complex that it becomes difficult to process using traditional data processing applications. The challenges include analysis, capture, curation, search, sharing, storage, transfer, visualization, and privacy violations.

en.wikipedia.org/wiki/Big_data

big dataIn my world it seems like everyone is talking about big data but when I move out of my specialist world and into the more ‘normal’ NHS front-line, and rub shoulders with nurses and other health care professionals, it doesn’t seem to have entered their world at all. But in truth big data is everything about their world – in future it could have a profound effect on care and everyone will have a role to play.

What is it?

Big data is really just lots and lots of data, from different places, that is mashed together and then analysed. It has become increasingly possible to understand data as more sophisticated computing power has come along. Modern computing power allows us to analyse what would have seemed impossible in the past. Now we can also store volumes of data that would have seemed impossible not so many years ago. We can now analyse data that is less well structured and still make it meaningful, especially by spotting patterns and trends that can then lead us to more detailed analysis.

I liken it to those fancy scanners they use on ‘time team’. The scanners give you clues what might have been underground but actually until you do the digging you may not be able to make real sense of it. Like the scanners big data can help you to see interesting patterns but often it needs much closer scrutiny – it takes a bit of digging to really understand. But if you couldn’t do the scanning you would never know there was anything interesting underground. Big data allows you to create new hypotheses and spot new relationships in care and treatments.

Of course big data isn’t just used in healthcare, it can be used in so many areas of life. Commercial companies are keen to tap into it to give them an edge to understand, for example, our purchasing behaviours; sports men and women can use it to improve performance; and we can use it in education to better understand how we develop and learn new skills. In all these areas it has the potential to transform and make a real difference.  In fact it has potential in so many areas of our lives.

Why does it matter?

science dataIn healthcare it matters because the data may have the clues to many disease processes that in the past have eluded our understanding. I have had type 1 Diabetes for nearly 35 years and in truth it feels like there has been very little progress in our understanding of the ‘why’ of Diabetes. Yes, treatments have improved but it often feels like a crude guessing game – and I apologise for that statement to all the wonderful scientists working in the field but I think big data might help them to get to the point more quickly.

The very precious nature of healthcare data

Of course any debate about access and storage of healthcare data is rightly heated and contested. Data about your health is one of the most personal aspects of your life and most people have a view about what it can be used for and who should have access to it. I agree that I should have some control but I really do want someone to find a cure for Diabetes. If I thought gifting my data, with some controls for privacy, would help to stop another young person at 16, as I was, finding out they had to face a lifetime of Diabetes I would do it gladly and willingly. Yet the debate about privacy and confidentiality continues to rage in the public domain.  We need to get this right – no excuses and no easy options; protecting the rights of individuals goes without saying.

If you are interested in what people who have chronic conditions want to use their data for then ‘Patients Like Me’ is a great case study to look at. I know that the data belongs to those individuals and they have the right to do with it what they will.  I do not want this post to be hi-jacked by the issue of privacy or confidentiality, nor am I saying it doesn’t matter – I just believe there are also other considerations to think about.

http://www.technologyreview.com/view/526266/patientslikeme-gives-genentech-full-access/

Data quality and responsibility

For practitioners big data does have an impact. Not only has it got the potential to transform how we deliver care in the future but practitioners have a responsibility to ensure the data they collect is high quality. In the past many records were rarely reviewed and languished for decades in medical records libraries in the bowels of hospitals. Now, and in the future, information we record will have a different visibility and transparency and we would do well to remember this.

Skills we will need

So the brave new world demands that we also have new skills. Being data savvy will, I believe, become a basic skill expected of people who work in the system and will go beyond simple statistics and the ability to use spread-sheets. We need skilled specialists too, people who can really help us to get to the nub of the data meaning.

Moving from knowledge to wisdom

owl wiseBut the most important addition we will all make to the big data debate is that of providing the context. Moving from knowing facts to a possessing wisdom requires us to throw upon the debate the light of truth and add our tacit knowledge and experience. It is people who provide this context, the insights and the meaning, turning facts into knowledge and then applying this to achieve greater wisdom; an endeavour we should all be contributing to. Here I mean ‘everyone’ – I don’t mean just people who work in systems, I mean just that: ‘everyone’. It is only if we have this whole context will we really be able to take the meaning from the data and take the steps we need to real wisdom.

Watch this TedTalk by Susan Etlinger to understand why big data is a journey we should all be engaged with. The title of my blog relates directly to her brilliant talk: