#NHSChangeDay pledge – ward dashboards and dictation


NHS+Change+Day_logo_calendar_png_5_____On NHS Change Day I committed to make more effort to visit front-line services that were using technology with an increased effort to understand the issues they face and to learn from them.

In a national role it is easy to feel disconnected from the front-line.  I already work an occasional shift on a ward, which certainly keeps me grounded, but in my role I am expected to have a really wide understanding of things related to informatics and in truth it’s a real challenge; not only do you have to keep up with the technology, which is going so fast, but also a wide understanding of how care is delivered.  I understand that I will never know everything about all of this and I never offer views about things I genuinely don’t understand, preferring instead to try to network people together who do know, but it is nevertheless essential that I have a broad understanding.  My visits are an attempt to make sure I increase my awareness and am genuinely doing my best to represent the profession in the wide ranging discussions I get involved in – I like to evidence my conversations where I can.

technology future

I arranged a visit to Northumberland Tyne and Wear NHS Foundation Trust.   angel of the northI had a great day – everywhere I have ever been to visit has always made me really welcome and North Eastern folk are renowned for their friendliness and hospitality.  I had to drive for 2 ¼ hours to reach the site but this was eased a little buy having to drive past the Angel of the North which I love.

There were two things they were showing me:

The first was the ward dashboard.  This is a great project.  The word dashboard implies something that shows performance against some targets, theirs is so much more than that.  They have moved the concept on a step and the dashboard is more of a knowledge centre.  They do have a screen that shows the key targets for them where they are using the Royal College of Psychiatrists ‘Accreditation for In-patient Mental Health Services’ (AIMS). These standards are a key quality improvement driver for them – you can read more about AIMS here:

http://www.rcpsych.ac.uk/workinpsychiatry/qualityimprovement/qualityandaccreditation/psychiatricwards/aims.aspx

The interesting thing for me about what they have done is they have gone beyond using the dashboard as just displaying performance and turned it into a knowledge centre.  There are many resources that staff can use that can help them to do the best quality work; evidence based assessment scales, forms, pathways – in fact a really useful resource for staff arranged in a central location that is kept up to date and fresh – I really liked it.

The second part of my visit was fascinating; first of all I want to tell you a story:

Imagine you are a community psychiatric nurse and you have just visited a psychotic patient.  They have complex needs and you leave their home and you know need to document the visit, it’s Friday and if anything happens over the weekend you want your notes to be available in the electronic system.  You pull your small car around the corner into a safe parking place and pull out your laptop.  You know you can connect but it’s a bit of a struggle, you have to turn around in your seat to open the lid of the laptop.  It takes your around 45 minutes to key in the information and you sigh with relief, stretch out and close the laptop down when you are finished.

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This is a real situation for many mobile staff.  Access to electronic systems has improved, so has equipment but inputting information into most devices in a car is a real challenge.

In NTW they were finding that clinical staff were regularly spending significant portions of their working day typing clinical documentation, in fact they were often spending longer documenting than actually seeing the patient.  Nurses are not always the best typists and the time taken to type into records can be laborious and was creating inefficiencies in the way they used their time.

The trust came up with an innovative way to try to tackle this problem – dictation – and it works! So the nurse now has a Blackberry into which she/he dictates a summary of the visit.  The recording is sent immediately to a dictation team who enter the information in draft form into the record.  By the time the nurse gets back to her home or base all she/he has to do is to check and authorise the entry.  It takes around 8 minutes for a long entry but many take less.  The results are impressive.

I spoke to a fantastic CPN who showed me how she worked.  She told me that it is difficult at first, dictation of records is not a skill nurses are taught and it feels strange but they developed some prompt sheets and a way of working that means they soon gain confidence.  Hannah, the CPN, had managed to save so much of her time that she had taken on extra duties assessing referrals to reduce waiting times – she was a really impressive nurse!

These images show an average day before and after dictation (the red is admin time, green patient time and yellow travel) for another CPN.  Its sampled days and not averaged but still gives an impressive perspective:

before dictationafter dictation

This is just a pilot for NTW, they have more work to do to see if they can make this work efficiently and at scale, but it really got me thinking.  I have done some web-surfing and nearly all of the work that has been done in dictation is for doctors in acute settings and concerns off-shoring of dictation but it could really make a difference for lots of community nurses too.  It demands that we develop new skills and ways of working but the early results in NTW are very impressive and worth exploration.

My visit achieved exactly what I had hoped for – my thinking has changed and I have new ambitions for the way electronic records could operate.  Thank you to all the staff at NTW NHS Foundation Trust who generously gave up their time for me – I am very grateful.

Have things improved since 1993?


Can you remember what you were doing in 1993? I can – I failed to get the job I thought I really, really wanted.  What was the job? It was the out-patient services manager in a very large acute hospital.  I wanted the job because I wanted to make things better.  I had been handling complaints for a little while and by far the greatest number seemed to be about out-patients; the out-patient manager and I had a great relationship but we never seemed to be able to make things ‘better’.  He was retiring and I wanted to ‘have a go’!

Waiting room

 

In 1993 the Patients Charter was published and we had a big push on reducing waiting times in clinics and starting using bar coding to record how long patients spent waiting.  We even tried using some computer modelling to try to improve things but I’m not sure we really made any difference.  I looked at  complaints data for 2011-12 and 27% of complaints were still about out-patients .  It started me wondering if we were making any real improvements and are we tackling the right issues?

https://catalogue.ic.nhs.uk/publications/patient/complaints/data-writ-comp-nhs-2011-2012/data-writ-comp-nhs-2011-2012-rep.pdf

How do I know that we didn’t improve things?  First of all, my experience of clinics, as a patient, has barely changed since I first entered the healthcare system in 1979.  Clinics are still the same in 2013 as 1979, with the possible exception that I am more likely to be seen more promptly.  But I’m not sure this is what people who attend are really most concerned about.

This week a number of things happened that reminded me of all of this.  While the media is alight with stories of 111, I have been thinking of more commonplace things.  Out-patient clinics are important places.  People’s lives are irrevocably changed in them; people are given life changing news, sometimes good and sometimes not so good and on occasions down right devastating.  For me all clinic visits provoke anxiety and an institutionalised behaviour where I sometimes surprise myself.  I become very compliant no matter what staff do, say or how they behave.  Over the last few years, perhaps with increasing age I have been a bit more confident with the medical staff but I admit I’m scared of the reception staff.  In addition I have never ever heard a doctor or nurse say ‘I’m so looking forward to clinic today’ – in fact this week a middle ranking doctor told me he hated being in clinic.  I’m not sure if he is unusual or not.

This week this brilliant inspired posting on Patient Opinion reminded me of all of this – clearly I am not alone.  Please follow this link and read this feedback:

https://www.patientopinion.org.uk/opinions/94942

The same week that I read this I also tripped up over a blog by a medic that I really liked.  He was reflecting on the experience of withdrawing money in India from a bank and compared this to the admission process here at home – I think he has a point and what’s more it also applies to many types of out-patient clinic.  I have stopped asking for the ‘one-stop-clinic’ where I can get everything done too – I just suffer the shuffle from one waiting chair to the next.

http://britishgeriatricssociety.wordpress.com/2013/04/29/streamlining-admissions/

Another blogger @mandyhall84 also describes her experiences here:

http://geektapestry.wordpress.com/2013/05/01/how-to-blob-the-square-of-the-op-process/

A lot of people visit out-patients – if I’ve got this right from the HSCIC information, there were around 6.5 million visits to out-patients in 2011/12 – that’s a big number. A review of issues relating to ‘appointments’ on Patient Opinion show a mixed bag of excellent to poor feedback.call bell

 

 

In all the time I have had diabetes I have never met another person with diabetes or a pump in the clinic area.  I believe there is great scope for improving things and using at least some clinics in different ways to support patients.  I feel confident that if the new modern out-patient staff had vision they would consider using a co-production approach to reviewing how we deliver these services – maybe they are?  Perhaps it’s just my personal experience, and I don’t like to generalise, but finally I would like to leave you with this paper by John Launer, whose writing I greatly admire:

http://pmj.bmj.com/content/88/1040/361.full

Why are we still getting it so wrong?

waiting chairs

Co-production and hope


Sometimes being so active online is a challenge – the amount of information that is thrown at me in various media is huge and it’s difficult to keep focussed and sift out those things I need to remember in a way that is more than passing interest. This specific blog is to help me to do that – to focus in on two things that I think are important that have struck me over the last week; the first is the parable of the blobs and squares and the second is the importance of young people and hope (my blog also includes paperclips!)Paperclips

The Parable of the Blobs and Squares
The parable of the blobs and squares was brought to me through the fabulous #leaders4leeds and specifically @smclrk . It really made me think about the concept of institutionalisation and how we treat and care for patients as well as how we resolve issues and consult with communities. By institutionalisation, in this context, I mean we force, through absence of choice, people who come into contact with our services to behave in a particular way. As a result they are less likely to choose or adopt any other approach or behaviour – as a result we may fail to capitalise on their knowledge, expertise and creativity.parable of blobs and squares

You can watch the short video that explains about blobs and squares here:  http://vimeo.com/42332617

You see when I am a patient I’m quite blobby; I don’t like to be processed like a sausage and I suspect that because of what I know and what I do for a living I feel quite blobby to the people who help me too. It’s not unusual for a nurse or doctor who doesn’t know me to quite quickly ask me ‘can I ask what you ‘do’?’ – I suspect despite my best efforts to conform I can be quite challenging and blobby.
But then our systems are often set up to be very square and sometimes when I’m at work I’m square too. We are often forced into designing processes that feel inflexible to the receiver; my clinic appointments often feel like this but conversely I have been responsible for clinics too and sometimes it feel impossible to do anything else other than design them as processes and in the way we do.

The parable of the blobs and squares points to different way to try to resolve the problems we face – that is co-production. The concept includes employing more ‘blobby’ people who can work across the interface between the square organisation and those people who have the needs that we need to meet – known also as boundary spanners. bridgeSo, for example, I wonder if clinics would look the same for patients with long term conditions like diabetes if we were to co-design them with patients…… I for one would be lobbying for perhaps more group orientated and social spaces. When I think back to the time I got my pump although my lovely Diabetes Specialist Nurse went through all the technical parts of learning to use the pump I would have loved to meet someone who was already a pump user. My only contact with those people has been online on Twitter. I see this as a real missed opportunity to build expertise amongst patient and perhaps more resilience and less dependence.

I recommend the Parable of the Blobs and Squares to you.
Hope
My second major thought this week is the importance of ‘hope’. It feels like there is negative pressure across the whole system at the moment – sometimes so much so that it feels scary. Hope makes it possible to lead and to see a vision of how things can be better and is vital if we are to cope with the challenges we all face.
Hope can come from unexpected places or at unexpected times but I see a pattern emerging for me and how I might be able to stay focussed on building hope. You may recall from my previous blog about the Florence Nightingale Foundation Conference how I was struck by @ruthcarnall who talked about emerging leaders and how we had a responsibility to help them to grow and lead? This week I also witnessed a young person who shone hope across nursing – Molly Case’s poem ‘Nursing the Nation’ at the RCN Congress 2013 had ‘hope’ written all over it.

 http://www.youtube.com/watch?v=XOCda6OiYpg
I also found another group of inspiring young leaders this week who again gave me great hope. Have you heard of the #StC Paperclip challenge? You can read about it here:Paperclip challenge

http://learningdisabilitynurse.com/stc-paperclip-challenge

This is a brilliant and brave idea led by a group of nurses that again gave me optimism and hope. Watch the video and be inspired!

My son also gives me hope. He is young dedicated and passionate about what he does. He doesn’t get everything right but then I didn’t either and I had to learn to be the best I could be – in fact I’m still learning actively!

 So I can see sparkling and shining lights of hope in the system and they are often linked to young people. I am going to make sure I give as much help and support to young people in our system as I can; Hopethey need the chance to make a difference and the confidence to challenge the status quo. I will be trying to support and mentor as many of them as I can!

“Only in the darkness can you see the stars” Martin Luther King Jnr
“The best way to not feel hopeless is to get up and do something. Don’t wait for good things to happen to you. If you go out and make some good things happen, you will fill the world with hope, you will fill yourself with hope.” Barack Obama

Is digital enough?


Twitter is fantastic as a place to have great conversations that wouldn’t be possible without this digital space – I love it – but again today I had another fantastic Tweetup, that is a face-to-face meeting with someone I first met on Twitter. It seems to me that as my twitter relationships evolve I instinctively want to make the effort to meet the person face-to-face. For me, it seems that for the required depth of some of the relationships, digital just isn’t enough. So what happened today was a little bit of face-to-face magic with @smclrk where I learnt so much and started to form a relationship that I hope will endure, that Twitter conversations alone would never have achieved.

This led me to think about some of the debates about using technology to deliver care – is digital enough? Many readers of this blog are likely to have read my earlier blog ‘To Whom it May Concern’ – it’s one of my most popular postings – and are likely to note that I seem to be advocating less face-to-face and more digital. Similarly Roy Lilley’s (@roylilley) blog for the KingsFund ‘It’s crept up on us’ is saying similar things; we need to recognise that in the world we know today surely technology has a greater role and place. I whole heartedly agree but I find the debates that this generates distracting and extremely frustrating.

The trouble is it sometimes feels like we are looking for a silver bullet, or a single direct approach or solution to the complex challenges we face in delivering care in a changing economic and societal landscape – in truth there is no one solution. complicatedSo why then do commentators persist in saying you can never replace face-to-face with technical solutions, implying that advocates of technology are saying this is the single way? I have never heard any advocate of new ways of using technology or innovation say that this is the case! What they do say is that for some processes (ordering repeat prescriptions for example) or transactions (a query about diabetes control from an experienced patient via email) technology can play a part.

When I went to work at NHS Direct in 1999 I remember being told by other nurses that you can’t care for patients over the telephone. 9184840_sI think this debate is past us now with lots of care being delivered using the telephone; but this is also not without its controversy, if I ever tweet or talk about my personal desire for telephone consultations someone will comment or question to say that I ‘don’t understand’ and that we should always use face-to-face and my heart sinks. I have never said or suggested that we could completely replace face-to-face care. As a person with a long term condition I can say for me that technology can have a role that will improve the quality of my life and (maybe) reduce the cost burden of my multiple hospital visits but equally I need to see my Diabetes Specialist Nurse sometimes for a different sort of conversation that cant be achieved on the phone or via email.

So, is digital enough? I say that it isn’t, and never will be, but it must have a role. Like my experience on Twitter some remote digital relationships are enough but for some, face-to-face is the way to go. My suspicion is that digital will have an increasing role in healthcare but it will never replace the dialogue that we have as human beings who occupy the same room. My plea is can we be balanced in our approach to adoption of new approaches to delivering services using new technologies that may improve the quality of life for some people?

Guest blog: Sweet Tale


This a first time for me on my blog – a guest blog.  My Mum’s husband, Ian, also has Type 1 diabetes.  I have known him for many years but I still found some of his story about his care surprising.  In many ways he is quite inspirational – you will see why as his story unfolds:

A SWEET TALE

By Ian Bowman

I am writing this narrative about my 42 years as a person who happens to have diabetes. I was prompted to do this by Anne, who felt that other people might benefit by the experiences I have had over the years; the things I seemed to get right and the mistakes I have made.

From the age of 13 when my father bought me a bike I have been an active cyclist, I joined a club and toured all around the local countryside. At 16 I started to race and by the time I was diagnosed as having diabetes I had become a 1st Category rider, so I was very fit – this has a bearing on my later life with Type 1 diabetes.  Just so you know a category 1 rider has to score a number of points in competitions for riding during a year and there is only one classification – elite – that is higher.  I understood this, unlike the term ‘Type 1’ – in those days you either had diabetes or not!

CheyBowmanTSpashett

I am in the lead here! Look at the cars to see the age of the photo!

At the time I was diagnosed I had no idea what diabetes was.  I was working as a joiner and I had started to feel lethargic and terribly thirsty.  Unaware of what was wrong I started drinking loads of lemonade little knowing that I was making it worse.  Eventually I went to the local GP who suspected I may have diabetes.  I, and the people around me, had a very limited knowledge of what this meant.   I knew not to eat cakes and biscuits but that was it; pastry, pies and savouries we thought were ok. This was all about to change and my life with it, when I was sent to hospital for tests.

I was sent to Middlesbrough General Hospital to the medical ward.  In those days you were kept in while they carried out the tests.  I was in hospital for a week; it was a strange week with me been totally ignorant of what was the matter with me.   Syringes, needles, diet, insulin, and all the things that would become part of my life I knew nothing at all about.  After a week and all the tests, I was diagnosed as having diabetes and was told by the consultant in her office.  It didn’t sink in to start with, everyone is afraid of the unknown.  I was fit young with things to do!  I was confused.  I walked out of her office and walked out of the hospital my mind racing with what I had being told.  I walked into the town my mind still trying to come to terms with this new twist in my life.  I remember it was a lovely day and I just walked.  Eventually, and this may give some idea of the person I am, I accepted the fact and decide to be positive.  I walked back to the hospital into the consultant’s office and told her that this condition was not going to stop me from doing anything I wanted – and by and large it never has.

The journey started from there, they would not let you leave hospital until they had worked out the right dose of insulin and I could inject yourself. They gave you an orange to practice on.  No way did I want to stay!  I wanted to go home, so I started to inject myself and have done so ever since.  I was given a glass re-useable syringe and a small box containing about 12½ inch steel needles,  you had to boil the syringe and needle every time you used them and you used the needles until they were blunt. I was also given a booklet with different values for carbohydrates, a word that I had to look up to see what it meant, and a testing system where you could test your urine for sugar levels.  With support at home I started to come to terms with my new way of life.  In those days I was on insulin which was a mixture of quick acting and long acting and it was bovine based.

At the time this was all alien to me but because of necessity we adapt. To carry on cycling I needed to learn more about me and the affect of having diabetes, hypos, glucose, measuring, testing, now a way of life.

Around the time I was diagnosed my GP was killed in a plane crash as a result no follow up with the hospital was ever arranged so I was never seen by a specialist. This left me very much to my own devices.  I went with no specialist support for 10 to 12 years with no one monitoring my condition.  I feel sure that I am living with the consequences now, much later in my life. I have problems with my feet (neuropathy) and eyes (retinopathy).  What has changed is the support we now receive; the back-up we get now has improved vastly.

Over the years I have never given up my cycling and I have managed to remain exceptionally fit and this coupled with what I had learned about myself helped me with my control.   In those days with the cycling club I was in it was common practice to ride 150 miles on a Sunday, from Skelton to Scarborough, Hexham, Pateley Bridge, York – all over the north east of England.  I still ride my bike today, still with the same club where I have been the Secretary and Treasurer for the past 30 years.  We still ride up to 100 miles some Sundays during the summer.  Back in 1975, I and two other members of the club rode the clubs 260 in 24 hours, which meant me riding nearly 300 miles that day.

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Riding in the alps

 

I did not return to the fold, i.e. under the care of a specialist, until it was decided to standardize insulin units when it was decimalized into units of a 100.  This changed my prescription and as a result I was required to attend the health centre where it was identified I had no specialist backup.  Now I have regular check-ups.  With support things have improved over the years needles and testing are better, meaning that my control now is quite good; my GP says I am his favourite patient.  I carry out multiple daily blood tests which helps me to achieve good control.

Another very important factor is the fact that I attended a DAFNE (Dose Adjustment For Normal Eating) course; I cannot recommend this highly enough.  DAFNE is a training programme designed to make it possible for people with diabetes to have a greater choice of food – as it says for normal eating.  DAFNE provides you with the skills necessary to estimate the amount of carbohydrate in your food and to inject the right dose of insulin. This helps you to lead as normal a life as possible, with good control.

A specialist once described having diabetes as like a three legged stool, the legs representing diet, medication and exercise; if you remove one leg the stool falls over.  You really could apply this to everyone, even if they haven’t got diabetes!  One positive aspect of having diabetes is that you health is constantly being monitored, problems identified even problems not necessarily diabetes related.  The other really important thing is be positive as having diabetes is also about getting to know yourself because everyone is different and you have to work out what works for you.

I am now 66 years old and not only do I still cycle I have done many long distance walks including the coast to coast walk.  I used to run half marathons, but since I retired I have concentrated on my first love – cycling. I also have two dogs to walk and an allotment which both myself and the wife do.

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Throughout my life I have believed that I can have a full and healthy life despite having diabetes and I still try to live my life in this way.  You cannot defeat diabetes but you do not let diabetes beat you.

Ian Bowman

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On the coast to coast walk

Reflections on the Florence Nightingale Foundation Conference 2013


It was a real pleasure to attend the Florence Nightingale Foundation Conference 2013 a couple of weeks ago. It was a real nursing leadership conference – the hall was rammed with some of the most inspirational nurses you could wish to meet; nurses committed to making a real difference for patients. It was a real change for me – a nursing focussed conference rather than an IT one!
We also had the opportunity to hear some really good speakers and this blog is my reflections about some of the messages that resonated with me – a personal reflection rather than a full account of the event.

First of all I attended a really interesting session about Schwartz rounds, presented by Jocelyn Cornwell from the Kings Fund and Vanessa Snowdon-Carr and Martine Price from Musgrove Park Hospital, Taunton where Schwartz rounds have been implemented. Schwartz rounds provide monthly one hour sessions where staff can discuss the emotional issues that arise from delivering care. The originated in the US where healthcare attorney Ken Schwartz, who died at 40 years of age of lung cancer, left a lasting legacy of a center that nurtures compassion in care-giving.

You can find out more about the Center here:
http://www.theschwartzcenter.org/aboutus/ourstory.aspx

The Kings Fund is running pilots of Schwarz rounds in the UK and is looking for more sites. You can find out more here: http://www.kingsfund.org.uk/projects/point-care/schwartz-center-rounds

I found the idea of staff being able to talk about topics such as ‘the patient I remember’ very moving and I found that I could remember a number of patients who had stayed ‘with’ me for many years.

We also had a fascinating presentation from Professor Davina Allen, a Health Foundation Improvement Science Fellow. Davina’s research is looking at what nurses actually do, how their work is organised and structured and hopes to describe the complexity of nursing – it’s a fascinating analysis that she described as ‘An Articulation of Healthcare’. Davina observed 40+ hours of nursing activity and has analysed this to describe in new ways some of the complex things that nurses actually do; issues like negotiating transition and information. Davina was describing her early findings and I’m looking forward to hearing more. There has never been a more important time for us to be able to describe and evidence what nurses actually do in more than a task orientated way.
[It was interesting to see and meet Davina – she is one of my fellow Johnson & Johnson/Kings Fund leadership group (please see previous blog)! As is Martine Price from Musgrove Park Hospital. – It’s a very small world!]
There were 2 speakers who said things in their sessions that really resonated with me. Ros Moore CNO for Scotland said two important things:

tweet

Ros indicated that she even used this language and approach when talking to ministers – interesting! I thought this was particularly important in terms of achieving a change in culture and emphasis. If we share a common language and it is orientated towards improvement surely this will help us to improve safety and care? Ros’s point was also reinforced later by a presentation by Jason Leitch (@jasonleitch) – equally impressive and consistent. It may be that consistency is important?
More about Scotland’s improvement policy can be found here:

 http://www.healthcareimprovementscotland.org/welcome_to_healthcare_improvem.aspx

Ros’s second point was a line on her strategy slide:

tweet 2

I thought placing trust in people in the system demonstrates value and encourages people to perform at their best. I liked it.
Finally, the one point that has really stuck with me was a point from Dame Ruth Carnell. Ruth was a great speaker, she was honest warm and engaging but she also said some very important things. The most important for me was about the leaders of the future.

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Ruth said that we needed to think about inversion of leadership. What I think she meant was that the elder leaders in the system needed to focus on bringing the new generation of leaders to the fore, to supporting them to mature as the brilliant leaders we will need in the system for future generations.

This made me reflect again on my blog on eldership:
http://anniecoops.com/2012/11/04/role-modelling-and-eldership
I definitely will be focussing how I can help/support/coach and mentor young leaders and I have made this one of my #NHSChangeDay pledges!
Watch out for next year’s Florence Nightingale Foundation Conference. If it’s a good as this one I hope to be there 